Information

Down syndrome is a life-long condition that causes delays in learning and development.

It cannot be cured but problems can be eased if people with Down syndrome have the right help and if other people have a positive accepting attitude.
It occurs because cells contain an extra chromosome number 21.
It can occur in any family of any race, culture or religion and is never anyone’s fault.

In New Zealand one baby in about 1000 is born with Down syndrome; that is one or more babies with Down syndrome born every week.
People with Down syndrome are individuals and vary in their abilities and achievements. They are contributing members of society.

Education

Down Syndrome Education International

DSE works to improve early intervention and education for children with Down syndrome everywhere. We support scientific research and provide evidence-based resources and services to help over 120,000 parents and professionals in 170 countries each year. DSE transforms the lives of young people with Down syndrome by improving understanding of their learning needs and by helping families and professionals to provide effective support, early intervention and education. Our goal is to improve outcomes for all children with Down syndrome, helping them to lead more independent, productive and fulfilling lives. https://www.dseinternational.org/en-us/

Numicon

New Zealand Program Director - Margi Leech www.numicon.co.nz

Events

29 August 2017

Quiz Night

Our Annual Fundraising Event.... A Quiz Night Extraordinaire! This is an all ages event with some excellent prizes, amazing auctions and a fun raffle. Get together a group of people to create your own team or we can put teams together on the night! Tuesday 29th August, doors open at 7pm; Food and drink can be purchased on the night from Sixty6; All proceeds from ticket sales and auction will be going back into each charity to help run activities not otherwise funded; Tickets must be pre-purchased through Dash tickets by clicking on the link below and the number of tickets will be limited so get in quick! We look forward to seeing everyone on the evening!

Support Networks

CCS Disability Action

We will work alongside you and your family / whanau – supporting you to get the right information, support and funding to meet your needs and fulfill your goals.

Phone: 0800 227 200

Email:

Web: http://www.ccsdisabilityaction.org.nz/

Early Intervention Coordination Service

Early Intervention Coordination Service Paediatricians make a referral to the Early Intervention Coordination Service (EICS).The group meets fortnightly and has representatives from each provider; also on the panel are a Paediatrician and the Discharge Nurse from the Neonatal Intensive Care Unit (NICU). The referral is discussed by the group and then an information pack with a letter advising which service/s is best able to meet the needs of the child and possible wait times for the service/s is sent to the family. Families are then asked to choose which provider they wish to go with. Once EICS have been advised they will notify the provider and the child’s Paediatrician. The chosen service will then make contact with the family to arrange the initial assessment.

Phone: 03 372 1373

Email:

Web: http://

IHC - Idea Services

Welcome to IHC New Zealand IHC will advocate for the rights, inclusion and welfare of all people with intellectual disabilities and support them to live satisfying lives in the community.

Phone: (03) 341 9299

Email:

Web: http://www.ihc.org.nz/

Jolt Dance

Jolts vision is to give a creative voice to people with disabilities and celebrate their uniqueness through dance.

Phone: (03) 332 0074

Email:

Web: http://www.jolt.co.nz

Manawani

Individualised funding is a payment mechanism to enable disabled people and their families to directly manage the Ministry of Health funded disability supports they receive. The supports are allocated by the NASC ( lifelinks) The service that can be managed by IF are currently limited to Personal Care and Household Management. Individualised funding offers the disabled person the ability to - choolse caregivers and service delivery plans; employ their own staff, or engage agencies or self-employed contractors; manage the payments for services of these staff and manage all aspects of service delivery.

Phone: 0508 462427

Email:

Web: http://

Ministry of Health

The Ministry of Health seeks to improve, promote and protect the health and well-being of New Zealanders through its leadership of New Zealand’s health and disability system advising the Minister of Health, and government, on health and disability issues directly purchasing a range of national health and disability support services providing health sector information and payment services for the benefit of all New Zealanders. The Ministry works in partnership with other public service agencies and by engaging with people and their communities in carrying out these roles.

Phone: 0800 855 066

Email:

Web: http://https://www.health.govt.nz/publication/clinical-assessment-and-management-children-young-people-and-adults-down-syndrome

Ministry of Health

The Ministry of Health seeks to improve, promote and protect the health and well being of New Zealanders through its leadership of New Zealand’s health and disability system advising the Minister of Health, and government, on health and disability issues directly purchasing a range of national health and disability support services providing health sector information and payment services for the benefit of all New Zealanders. The Ministry works in partnership with other public service agencies and by engaging with people and their communities in carrying out these roles.

Phone: 0800 855 066

Email:

Web: http://https://www.health.govt.nz/publication/clinical-assessment-and-management-children-young-people-and-adults-down-syndrome

Ministry of Health

Your Guide to Individualised Funding Published online: 30 May 2012 Your Guide to Individualised Funding cover image Summary This booklet is published by Disability Support Services. It covers: What is Individualised Funding (IF)? What can be purchased using IF? What is offered by IF Hosts? Costs Responsibilities under IF How IF works (flowchart) Glossary of terms

Phone: 0800 855 066

Email:

Web: http://https://www.health.govt.nz/publication/your-guide-individualised-funding

NASC Agency - LifeLinks

Lifelinks aims to promote independence in an accessible world. Lifelinks offers three Needs Assessment and Service Coordination Programmes under contract to the Ministry of Health, District Health Boards; For people aged up to the age of 65 years and who have intellectual, neurological,physical and sensory disabilities.

Phone: (03) 365 9593

Email:

Web: http://www.lifelinks.co.nz

New Zealand Down Syndrome Association

The NZDSA is a national non-profit organisation. The NZDSA is not a service provider but we provide information to families / whanau of people with Down Syndrome. You can contact the NZDSA for support via the freephone service or email.

Phone: 0800 693 724

Email:

Web: http://www.nzdsa.org.nz

Parent 2 Parent

Empowering families and whanau of people with disabilities and health impairments through support and information. Caring for a family member who has a disability is an experience few parents anticipate or plan for, and one that can bring strong emotional challenges in day to day living.

Phone: 03 365 3239

Email:

Web: http://http://www.parent2parent.org.nz

Sarah Goodall Specialist Therapy Services

Specialist Therapy Services offers private care and special needs support for parents and people with special needs. Our services are based on proven techniques that encourage not only the student but also the parents and care givers alike. We understand that including and encouraging the parents and caregivers, and providing them with support, training and tools, are vital to improving the lives of those with special need

Phone: 0800 703 313

Email:

Web: http://http://www.stsnz.biz/

The Champion Centre

The Champion Centre provides multi-disciplinary early intervention services to infants and young children with significant disabilities and their families in Canterbury. The programme is offered in a centre-based model of service, in partnership with parents, and in accordance with international best practice. .

Phone: +64 3 383 6867 The Champion Centre office is open from 8:30 a.m. to 4:00 p.m. Monday through Friday

Email:

Web: http://http://www.championcentre.org.nz/

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