Information
Down syndrome is a life-long condition that causes delays in learning and development.
It cannot be cured but problems can be eased if people with Down syndrome have the right help and if other people have a positive accepting attitude.
It occurs because cells contain an extra chromosome number 21.
It can occur in any family of any race, culture or religion and is never anyone’s fault.
In New Zealand one baby in about 1000 is born with Down syndrome; that is one or more babies with Down syndrome born every week.
People with Down syndrome are individuals and vary in their abilities and achievements. They are contributing members of society.
Education
Ministry of Education
http://www.education.govt.nz/ministry-of-education/
Numicon
New Zealand Program Director - Margi Leech www.numicon.co.nz
Events
21 March 2021
World Down Syndrome Day 2021
Quail Island - Family Picnic 11.15 to 2.00pm Contact cdsainc@gmail.com for more details
Support Networks
Big Fun Gymnastics
Big Fun's objective is to provide a fun environment where people can gain confidence by improving their co-ordination, balance, strength and gross motor skills. Big Fun is a therapy/recreational programme which combines sensory integration therapy with the ultimate sensory integrative sport GYMNASTICS. Big Fun is available for people with special needs who want to take part in a recreational activity that helps with motor problems, low tone, sensory issues including ADHD, ASD, dyspraxia, cerebral palsy, spina bifida, down syndrome, fragile x, angelmans syndrome to name a few. Participation is in a 1:1 or small group basis. As one client says "We love you guys, best therapy ever!" We operate from the Christchurch School of Gymnastics Campus at 18 Watts rd, Upper Riccarton.
Phone: 027 380 8470
Email: bigfun@hotmail.co.nz
Canterbury UPP Club
UPP Club is targeted at children and young adults with Down Syndrome aged 13+. The UPP Club is a place where we meet friends, learn new skills and have fun.
Phone: (03) 339 0936
Email: uppclub@gmail.com
CCS Disability Action
We will work alongside you and your family / whanau – supporting you to get the right information, support and funding to meet your needs and fulfill your goals.
Phone: 0800 227 200
IHC - Idea Services
Welcome to IHC New Zealand IHC will advocate for the rights, inclusion and welfare of all people with intellectual disabilities and support them to live satisfying lives in the community.
Phone: (03) 341 9299
Email: southern@idea.org.nz
Jolt Dance
Jolts vision is to give a creative voice to people with disabilities and celebrate their uniqueness through dance.
Phone: (03) 332 0074
Email: info@joltdance.co.nz
Manawani
Individualised funding is a payment mechanism to enable disabled people and their families to directly manage the Ministry of Health funded disability supports they receive. The supports are allocated by the NASC ( lifelinks) The service that can be managed by IF are currently limited to Personal Care and Household Management. Individualised funding offers the disabled person the ability to - choolse caregivers and service delivery plans; employ their own staff, or engage agencies or self-employed contractors; manage the payments for services of these staff and manage all aspects of service delivery.
Phone: 0508 462427
Email: info@incharge.org.nz
Web: http://
Ministry of Health
The Ministry of Health seeks to improve, promote and protect the health and well-being of New Zealanders through its leadership of New Zealand’s health and disability system advising the Minister of Health, and government, on health and disability issues directly purchasing a range of national health and disability support services providing health sector information and payment services for the benefit of all New Zealanders. The Ministry works in partnership with other public service agencies and by engaging with people and their communities in carrying out these roles.
Phone: 0800 855 066
Email: info@health.govt.nz
Ministry of Health
The Ministry of Health seeks to improve, promote and protect the health and well being of New Zealanders through its leadership of New Zealand’s health and disability system advising the Minister of Health, and government, on health and disability issues directly purchasing a range of national health and disability support services providing health sector information and payment services for the benefit of all New Zealanders. The Ministry works in partnership with other public service agencies and by engaging with people and their communities in carrying out these roles.
Phone: 0800 855 066
Email: info@health.govt.nz
Ministry of Health
Your Guide to Individualised Funding Published online: 30 May 2012 Your Guide to Individualised Funding cover image Summary This booklet is published by Disability Support Services. It covers: What is Individualised Funding (IF)? What can be purchased using IF? What is offered by IF Hosts? Costs Responsibilities under IF How IF works (flowchart) Glossary of terms
Phone: 0800 855 066
Email: info@health.govt.nz
Web: http://https://www.health.govt.nz/publication/your-guide-individualised-funding
NASC Agency - LifeLinks
Lifelinks aims to promote independence in an accessible world. Lifelinks offers three Needs Assessment and Service Coordination Programmes under contract to the Ministry of Health, District Health Boards; For people aged up to the age of 65 years and who have intellectual, neurological,physical and sensory disabilities.
Phone: (03) 365 9593
Email: campbell@lifelinks.co.nz
New Zealand Down Syndrome Association
The NZDSA is a national non-profit organisation. The NZDSA is not a service provider but we provide information to families / whanau of people with Down Syndrome. You can contact the NZDSA for support via the freephone service or email.
Phone: 0800 693 724
Parent 2 Parent
Empowering families and whanau of people with disabilities and health impairments through support and information. Caring for a family member who has a disability is an experience few parents anticipate or plan for, and one that can bring strong emotional challenges in day to day living.
Phone: 03 365 3239
Email: Joannah@parent2parent.org.nz
Special Olympics NZ
Special Olympics NZ, supports 46 Special Olympics Clubs throughout NZ. Those clubs provide year round training in a large number of sports and also run events, certificate days, ribbon days,regional games and national games.
Phone: +64 4 560 0360
Email: info@specialolympics.org.nz
Sunshine Football
Sunshine Football was formally established in 2009 and is a programme that is managed by the Southwest Football Foundation Trust. The programme is designed to provide footballing and regular exercise opportunities for players with developmental delays including those with Down Syndrome and Autism. We have trained coaches who provide low coach - player ratio training and support. The exercises are fun while encouraging skill development. Our Sunshine Football programme runs as follows: 4 May 2015 – 8 weeks, at indoors at Action Indoor Sports 27 July 2015 – 8 weeks, at indoors at Action Indoor Sports Early November – 6 weeks at the Halswell Domain Late January – 6 weeks at the Halswell Domain If you are interested in playing please contact Kaye Young – kaye.swfft@xtra.co.nz Be prepared to have the time of your life !!!
Email: kaye.swift@xtra.co.nz
Web: https://www.facebook.com/sunshinefootballchristchurch/info/?tab=page_info
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